Thoughts from Kay on Her Journey

Friends of the Nunnery family:

What follows in this blog are the emailed updates from Kay (and Kevin) throughout her journey over the past couple of years.  All the updates appear on this page.  Although not originally a blog, the entries are now catalogued in the left column by date.  Click the arrows to expand specific months, or click an entire year at a time.

On behalf of the family, we pray you are blessed by Kay’s faith and courage.  Expressions of love and sympathy can be posted in the comments sections below.  Click the comments link to add a comment.

Kevin’s Message at Kay’s Celebration Service

I want to thank you all for coming. Kay, Andrew and I are truly blessed to have so many caring family and friends.

It’s impossible to say everything I want to say about Kay. She was a loving mother, daughter, sister, friend, coworker and wife. She loved her family and friends.

When we got married it is an understatement to say I was not as spiritually grounded as she was. I thought I was. But I soon found out the she was in the pros. And I had apparently been stuck in the developmental leagues for many years, because I certainly didn’t have the skills she had.

She wanted to find a church home right away, and to me it was a matter of much less urgency, frankly. So she guided me, shepherded me, sometimes gently and sometimes needing the staff, visiting many churches in the area.  And then one Sunday morning we came to Providence Baptist Church.

I parked and we got out and I remember saying that the place looked like a hotel, and that if there was a cult inside, they weren’t doing a very good job of disguising it. I REALLY thought attending even one service in this church was something that I DID NOT want to do. But we attended the service, and I escaped successfully. The next week we didn’t discuss where we were going to attend church, we just got in the car on Sunday morning and started driving. And she wanted to GO BACK  to Providence.  And I explained that I was from a small town, and grew up in a comparatively small Methodist church, and knew for sure that I didn’t want to go to Providence again, and potentially be asked to drink anything that looked like Kool-Aid, punch or juice. But she asked me to come for one month, and then we would reconsider. Being a reasonable man I agreed to her bargain.  And during the next two services I started looking for all the reasons why we could mark Providence off the list. By the end of the month, all I could really come up with was, it’s too big. But the last week, we were spoken to by members who made us feel like we were welcome, and that made me less apprehensive to come back. It took me a while, but Kay led me to the point where I agreed to join Providence. But to join, I had to be baptized by full immersion. By David Horner (and by the way, he wears fishing waders under the robe).

I also had to give my testimony. And I remember being uncomfortable about it, but I knew it was the right thing to do, and I did it one Sunday night. And Kay told me how proud she was of me. But SHE was the real reason that it happened. She did me the greatest service anyone could do.

A few months later Kay and Dottie Haynes signed Bob and me up for Johnny Evans and Charles George’s Monday Night Bible Study, and then told us what time we needed to be at church. Kay and I had heard Johnny speak here, and she knew I needed to hear more of what he had to say. So she took the initiative and signed me up.  That was 10 years ago and now Bob has been a huddle leader for 8 years I guess. And I have been blessed by her foresight and leadership in helping me find God through that ministry over that same time.

So she really was instrumental in my spiritual well-being. For that I will be forever indebted to her.

But I want my part of this celebration of her life to emphasize what both Kay and I realized over a year and a half ago was an important calling she received from the Lord. And that calling is about you guys out there.

Let me begin by saying that Kay was a person who held herself accountable to high standards. She expected a great deal from herself.  She wanted the best for those she loved, she wanted us to have her best.

It is also true that she was quite self-conscious and she placed a high value on her privacy. So when she was diagnosed with cancer, a never-ending struggle was introduced into her life, in addition to the physical ailments. And it was a very personal conflict of having to deal with her self-consciousness and personal need for privacy, and the need to address the ever-present concern and desire of others to know about how things were going with her.

For several weeks it was something that I tried to help her with as much as I could, without a great deal of success. I tried to answer the phone as much as possible and many times we just let it ring until voicemail picked up, because we were exhausted.

Then one day, she wrote an email to a list of people she had compiled. In it was information on what had been happening and what we knew about procedures to come. And she asked me to proof read it before she sent it out.  And at the end was a sincere thank you to all for their concern and prayers and a bible verse she had picked out.

That message represented a huge effort on her part, with chemo and radiation treatments in full swing, to not only let loved ones know how things were going but to begin to share her faith with those who read her messages. Some of those people were not believers in God, and she wanted them to know how much the Lord meant to her in her time of need.

In all she was going through, she was thanking those who were praying for her, and trying to convey to many how precious her faith was. I realized she was doing for all those who were reading those emails what she had done for me.

The distribution of those emails and the responses to them snowballed rapidly. I was amazed and humbled by both her strength of commitment to this calling she felt, and to the surprising responses of people who were reading her messages and marveling at her faith. There were responses from people who her messages had been forwarded to. People I didn’t even know.

I want to read an email she sent out on January 31, 2009. It’s a snapshot in her journey that helps make the point I want all to leave here with, a point I know Kay wants me to make.

It reads-

Thanks be to God for His indescribable gift! -- 2 Corinthians 9:15

So many times and under so many circumstances we keep coming back to this verse that it truly has become our heritage – our family’s life verse.   Often our family relies upon this verse to describe so many situations in our lives. Our miracle child, our church, school, neighborhood, and friends.

How do we thank all of you who have been with us through all these treatments? There simply is no way, other than to say “Thank You” and hope that you somehow get a tiny glimpse into our hearts to see how truly grateful we are for each of you and your role in this process.

This treatment plan has not been easy and we knew that going in. At times it has seemed insurmountable. But we have seen God’s hand at many turns and He has seen us through many, many times of difficulty. We still have lots of work ahead of us in terms of recovery – weight issues, strength issues, and medication issues – but we know where to go each and every time we need assistance. Please continue to keep us in your prayers as we go forward in this ongoing process.  There is much work to do and many prayers to be answered!

Thank you for helping us arrive at this place. And of course, the ultimate thanks always goes to God. What a truly indescribable gift!

It is unmistakably clear to me that the suffering that was so real to Kay was being used by the Lord to mold the content of those messages and to make them a powerful tool for His purposes.

She continued to write them until the last of her days here with us. She didn’t ever, ever shrink from that very difficult task for her personally, and she did it out of love. Love for God and love for all of us who read them. She was a wonderful wife, daughter, sister, aunt, friend and servant of her Lord. She loved God and she loved others, and she went to great personal sacrifice to try and convey the importance of faith in God. And that is the thing I hope everybody gets. Andrew and I are so very proud of her and very fortunate to have had her in our lives. I hope that those of you here, who were like me before I met Kay, hear her message to you. God Bless You All. I thank you for coming.

March 2, 2010

I feel a huge responsibility to call each one of you, you have been so faithful and such a indescribable blessing, but I just don’t have the strength right now. Please know that our family loves you all.

Kay went to be with the Lord last night at 12:20 AM. Please pray for Andrew and her mother now, if you will.

March 1, 2010

They cannot see a clot, although a small one could be present. They think she has pneumonia in her good lung and she is in respiratory failure due to infection. She is on a ventilator now, and is “quasi-stable”. This is very serious. I covet your prayers now. Thank you for being so faithful to my family. I’m not sure what I would do without the prayers-

Kevin

March 1, 2010

We have had to make a trip to the Emergency Room and they are assessing Kay right now. She has had trouble breathing today and they are testing for a pulmonary embolism or blood clot in her good lung.  I am praying there is no blood clot, but we won’t know until after a CT scan is done.

She is where she needs to be and they are monitoring her very closely. I will send more info when I get it and get the chance. Your prayers are greatly appreciated-

Kevin

February 25, 2010

We are going home today, praise the Lord!!!!!   We’ll see how the pain relief goes, I went to the CVS back in Raleigh last night and had them print out all Kay’s meds so the Drs at Duke could see what her baseline was. They finally relented and wrote her new scrips with larger doses, so I  think we are going to be OK. Thank you for your prayers through all of this, we couldn’t have been more blessed than to have friends like you guys.  More later, the nurse is back to start training me!!!

k

February 24, 2010

As I write this Kay is resting in the bed, after a very long day of trying to adjust her pain medicine so that she can get some tolerable degree of pain relief on a consistent basis. The challenge is that she can only have liquid pain relievers, no pills, because she can’t swallow (NPO). Liquid pain relievers work fairly quickly, but not for very long. Also, they don’t want to give her too much and possibly knock her out or depress her breathing. So in erring on the conservative side of the dosage see-saw, they do not medicate her enough to control the pain breakthroughs. On every 2-3 hr dose cycle last night and today, by the end of the cycle she was miserable. It is very hard to watch.

My prayer is that we can get this problem resolved before we go home. They have told us she can go home either Thurs or Friday. I can’t wait to get her home, but I sure don’t want to go without enough pain medicine!!!!

Everyone has been praying and we feel so very very blessed to have such caring friends. No one could ask for more. We love you all-

Kevin

February 22, 2010

The power of prayer will never be lost on us. Kay is walking without oxygen, 1,400-1,500 yards per day. I can assure you that each one of you account for some of those yards. She’s VERY sore and still has one drainage tube in her chest (the smaller of the two they inserted), along with various IV’s and a feeding tube, but she is making progress.  I really don’t know how to explain being up here in this section of the hospital where so many people have had such major surgeries, and we are also right beside  the ICU, so we see a lot of the same folks every day. They all need prayers and  we are trying to pray for each other as much as possible. Incredible place.

I can’t express my appreciation for such wonderful friends as you all. There just aren’t words. We love you.

We are tired and are going to try to get some sleep, between alarms, code reds, and tests. More later, I promise-

Kevin

February 20, 2010

The Lord has been with us today, thanks to so many prayers. I’m just overwhelmed with gratitude for all that everyone has done for us.

Last night there were issues through the night with low blood pressure, but they finally got those resolved after several hours. She managed to get a few hours sleep, which is most since we’ve been here.

Another very hectic day, with more progress. The large drain in her chest, her epidural and her jugular IV were removed today. With less metal and plastic poking her, her comfort has increased. She has walked 8 laps and will go out on the “track” one more time before bed. There’s still several more IV’s and one smaller drain in her chest cavity, but we are definitely over the hump.

They just  told us they will give her the first “meal” through the feeding tube sometime tonight. She hasn’t eaten since supper Wed. so she’s REALLY looking forward to that.

We both feel so blessed to have such wonderful friends and good medical care. I will try to update again tomorrow if I can find some time. God Bless you all!!!!

Kevin

February 19, 2010

Everyone-
All the Drs came by this morning. To a person, they say Kay is  doing “great”. Glory be to God! Your prayers and love have benefited her immensely and we cannot begin to express our gratitude. Today will be a very strenuous day of more walks and breathing exercises every 6 minutes. Thank you so much for your support.

So now it’s off to x-ray then a lap around the “track”. Busy, busy busy. Good Bless you all!

Kevin

February 18, 2010

Kay was moved out of ICU today at about 1 PM to a “step down” room in the cardio/ thoracic unit of the hospital where she will stay until she goes  home! So I’m very thankful for that and that she is able to get up and walk a little, with a stable blood pressure. She’s breathing on her own and her oxygen/gas levels are in the acceptable range. I was waiting until after I spoke with the surgeon before I wrote the update, but he still hasn’t come by, so I’m not waiting any more.  Thanks so much for all the prayers, they have been and continue to be  a huge blessing, which we will be forever grateful for.  She hasn’t been evaluated on her vocal chord condition yet, so no news there. Gotta run, time to try another walk! Thanks to you all-

Kevin

February 17, 2010

I just talked to the surgeon, he was able to remove her lung. There were some complications, when he separated her bronchial tube from her esophagus, her esophagus tore, so he had to sew that up and put in a feeding tube, that will stay in for a few weeks. It will also prolong her hospital stay by a few days. Her vocal nerves could have been affected, we won’t know more until tomorrow. She must be evaluated. Please pray for that. 

Our whole family is so grateful for your exceptional care and prayers. I feel unexpressably blessed. I must go to recovery now, I just wanted to get the good news out about her lung being removed before I go back. All the Nunnery’s love-

Kevin

February 16, 2010

How quickly a week passes when you are eating wedding cookies, filet mignon, pound cake, pizza, homemade macaroni and cheese, brownies, choc chip cookies, gourmet sugar cookies, cheesecake, doughnuts…the list goes on and on.  Thanks to all of you who helped me accomplish my mission to gain weight in such a mighty way!  And yes, let me assure you, the mission has been accomplished! ☺

We have just learned I am scheduled for surgery tomorrow (2/17) at 8:45 am with an arrival time of 6:15 am.  We covet your prayers and we thank you for your dedication to us. 
Once again, here are our specific needs:

1. That we would glorify God in all that we do

2. That Dr. Harpole would be able to remove ALL cancerous matter

3. That I would be free from blood clots or infections

4. That my healing would be complete

5. That my loved ones would walk in a hedge of protection, free from worry or exhaustion, safe in their travels and feel the Lord’s presence in a special way.

We have really felt your prayers over the last week.  I have truly experienced that peace that comes only from the Lord.  Thank you, thank you, thank you as we embark on what I pray is the last leg of this journey toward healing.  We will update you as soon as we can.

“This is my comfort in my affliction, for your word has given me life.”  Psalm 119:50

Kay and family

February 9, 2010

Hello all—

As it turns out, my Dr. Harpole has to be in Japan this weekend and has decided he would prefer to delay my surgery for 1 week (2/17) since he is going to be away.  We appreciate his sensitivity to us in this regard.   In some respects we would have preferred to go ahead and get this behind us, but we also know that our situation has been covered in much prayer and we know God is not surprised by this turn of events.  So, I have another week to do my breathing exercises and continue on my weight gain mission! ☺ 

Thanks to all of you for your continued prayers.  We promise to keep you posted.  Much love and God bless –

Kay and family

January 22, 2010

All –

Here is our latest news:  We met with surgeons at Duke on Tuesday of this week.  The primary surgeon, David Harpole, believes I will benefit from surgery to remove my left lung and some surrounding tissue.  We are thrilled that God has seen fit to grant us this opportunity!

Doctor Harpole is one of about 3 surgeons nationwide who do this type of extensive surgery regularly.  He averages about 20 per year and trained with the doctor who developed the procedure.  He is in his words “the surgeon of last resort” in the southeast US.  His interpretation of my tests is that my left lung is not functioning very well at all, and is not oxygenating the blood flow as it should.  Essentially a “dead” lung that is working at about 5% capacity.  If he can go in and cut the blood supply to that lung and remove it, my remaining lung function will be more efficient.  And the remaining cancer in the left lung will be removed.  Those are his plans for Feb 10.  We will do pre-op work on Feb 9. 

The chemo drugs I am currently taking are good, and could continue to work indefinitely, but I have really exhausted most of my chemo options.  This surgery is my best chance for the long term, a curative approach.

Doctor Harpole went through the possible complications with us and I am including them below, among the things that we ask you to cover in prayer for us, please. 

1. There is a chance that the scarring done to my lung and other tissue from the chemo and radiation could be too extensive to remove.  If that is what he finds when he begins the surgery he will not proceed with the removal.

2. The risk of blood clots is great with this surgery and given my circumstances.

3. The risk of infection is always a threat with any surgery and especially one this extensive.

4. Please pray also for my family;  my sweet little boy who doesn’t want his Mom to have her lung removed, my dear husband who just WOULD NOT GIVE UP until he found a better option for me, and my awesome Mother who works tirelessly to hold us all together.

5. That God will close the doors that lead down the wrong path.

We have been praying #5 for awhile now and on Tuesday am before the appointment at Duke I was praying that God would not only close the wrong doors but would PUSH us through the right ones.  We believe He has done that and it is with much rejoicing and thanksgiving that we approach this surgery.  Dr. Harpole is a Christian and we told him about you, our prayer warriors.  He welcomes that intervention.

Yes, I am scared.  But I know I am not alone and it is thrilling to see how God is working on our behalf.  Thank you for your part in that too. 

In the meantime, I was instructed to “get fat” before the 10th so I am working hard on that.  Andrew celebrates his 11th  birthday (Oh. My. Goodness.) on Feb 4th and we will be celebrating the “goodness of the Lord in the land of the living” (Psalm 27:13) as we go forward.  Once again, we covet your prayers and we thank you dearly for them.

“…Be strong and of good courage, and do it; do not fear nor be dismayed, for the Lord God, my God, will be with you.”  I Chronicles 28:20

Kay and family

January 12, 2010

My dear Prayer Warriors,

Happy New Year! I hope everyone had great holidays.  We certainly did.  Andrew declared ours the “best Christmas ever!” (as he usually does) so I know you have all been keeping the prayers lifted for us.  Thank you. 

At my last writing we were preparing to have more tests done and investigating the possibility of some extensive surgery.  Overall my tests came back pretty good.  The area of concern has decreased in size and contained in its original location.  There is no evidence of metastasis!  The fluid around my lung is still present but continuing to decrease in volume!   Both of these were very good results.  My pulmonary function test however showed a decrease in my breathing capacity.  We were surprised by this development as I have been told that my breathing function all along has been “superb”.  Unfortunately it seems the chemotherapy drugs can have an adverse effect on “good lung” tissue.  The UNC surgeon did not feel that my lung function was good enough to pursue the surgery.

Doctor Socinski (my oncologist) has suggested we visit a surgeon friend of his at Duke and we are awaiting that appointment to get another opinion.  In the meantime I have been exercising my lungs to try to see if the good lung capacity can be increased and re-visit the surgery option.  I will be seeing a UNC pulmonologist to discuss this further.  For now I will continue to have a lighter version of the chemotherapy I just finished, since it seems to be working to keep the disease contained.  The fluid level has decreased significantly and we have been very encouraged by that.  Overall I am feeling pretty well, actually getting back into my office some starting this week. 

We thank you so much for your continued prayers.  While we wish we could go ahead and get the surgery question answered, we are learning that waiting on the Lord may be just what He intends for us to do.  Seeing the fluid level reduction as we wait has been an important lesson.  Please continue to keep us in your prayers.  There are several things that need our Lord’s attention:

1. Encouragement and peace of mind for my dear family

2. Wisdom for us and the medical team as we pursue future treatment options.  Please pray that the Lord will close all doors that lead down incorrect paths.  Please pray also for a hedge of protection around us as we continue on this journey.

3. I am developing some sensitivity to one of the chemo drugs.  Please pray that I would be able to continue receiving this drug.  We are on a schedule of treatment every 3 weeks, beginning on 1/19.

4. Vein access (enough said!)

5. My overall endurance – physical and mental

6. Restoration of my health

We want you to know that your prayers mean so much to us.  And please know that God hears your prayers.  We are convinced of this many times over as we see God’s fingerprints all over our situation and the many blessings that continue to pour our way.  We thank God for you and your dedication to us.   And we trust Him with all the details and with the outcome.   

Psalm 57:3  “He sends from heaven and saves me…God sends His love and His faithfulness.”

Kay and family